Search results for "family care"
showing 10 items of 59 documents
Controlled education of patients after stroke (ceops)-nurse-led multimodal and long-term interventional program involving a patient''s caregiver to o…
2018
Background Setting up a follow-up secondary prevention program after stroke is difficult due to motor and cognitive impairment, but necessary to prevent recurrence and improve patients’ quality of life. To involve a referent nurse and a caregiver from the patient’s social circle in nurse-led multimodal and long-term management of risk factors after stroke could be an advantage due to their easier access to the patient and family. The aim of this study is to compare the benefit of optimized follow up by nursing personnel from the vascular neurology department including therapeutic follow up, and an interventional program directed to the patient and a caregiving member of their social circle,…
”Paljo luvataan, mutta ei sitten kuitenkaan” : muistisairasta läheistään hoitavien kokemuksia omaishoidon tuen hakemisen ongelmista
2022
Omaishoidon tuki on keino vastata kasvaviin palvelutarpeisiin. Kaikki muistisairaiden omaishoitajat eivät kuitenkaan hae tai saa omaishoidon tukea. Artikkelissa kuvataan omaishoitajien kokemuksia omaishoidon tuen hakemisesta. Tulosten mukaan omaishoidon tuen hakeminen voi olla monimutkainen prosessi, jota edistävät ja hidastavat monet tekijät. Puutteellisen palvelutarpeen arvioinnin vuoksi omaishoitajat voivat jäädä jopa kokonaan tuen ulkopuolelle. peerReviewed
CareACT - internet-based intervention for enhancing the psychological well-being of elderly caregivers – a study protocol of a controlled trial
2019
Abstract Background The rapid increase in the number of elderly family caregivers underlines the need for new support systems. Internet-delivered psychological interventions are a potential approach, as they are easy to access for family caregivers who are often homebound with their care recipient. This study examines the relative effectiveness of an internet-based acceptance and commitment therapy (ACT) intervention or a standardized institutional rehabilitation program, first, in reducing depressive symptoms, and second, in improving the well-being and quality of life of elderly family caregivers compared to a control group receiving support from voluntary family caregiver associations. M…
3 Palliative care at home in patients with oncological diseases: trends in characteristics and circumstances of the primary family caregiver
2020
Introduction This study aims to describe the characteristics and circumstances related to caregiving at home of family caregivers of people receiving palliative care at home due to cancer disease. Method Design: Descriptive, cross-sectional study. Sample: family caregivers of people in follow-up in the home care program. Period: July/2015 to December/2016. Variables: sociodemographic data, characteristics of the role of caregiver as previous experience caring, reasons for caring, living together, simultaneous care of other people, care environment preferences, perception of the relationship, time and hours assuming care. Results The sample was made up of a total of 80 relatives, 56 (70%) we…
Family's role in long‐term care : A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
2022
Family members are important providers of care for older people. In residential long-term care, however, their role is not always simple and straightforward: responsibility for care provision rests officially with staff members, but in practice family members often contribute to providing care. The main reason for admission to long-term care is functional decline. At the same time, the maintenance of functional ability is a central goal in long-term care. It is therefore reasonable to assume that functional ability is also an important factor in the relationship between family members and long-term care residents. This study aims to explore how family members experience their role in suppor…
Experiences faced by next of kin during their older family members’ transition into long-term care in a Norwegian nursing home
2013
Aims and objectives To describe and explore experiences of next of kin during the older persons’ transition into long-term care. Background Moving into long-term care is a challenge for both resident and next of kin. Next of kin experience transitions at the same time as they play significant parts in their family members’ transition into long-term care placement. Design Constructivist hermeneutical design. Methods Ten next of kin to newly admitted eight residents were recruited by purposeful sampling and interviewed. Periodic participant observation periods following new residents on arrival day and the first week after admission and some written documentation were the backdrops to the int…
A new measure of home care patients' dignity at the end of life: The Palliative Patients' Dignity Scale (PPDS).
2015
ABSTRACTObjective:This study aimed to develop a new and brief instrument to be employed in dignity measurement, one based on the perceptions of patients, relatives, and professionals about dignity.Method:Surveys of patients receiving palliative care, family caregivers, and palliative care professionals were first carried out (sample 1). In the second step, palliative care patients were surveyed with a pilot questionnaire (sample 2). Finally, a survey design was used to assess patients admitted into a home care unit (sample 3). Sample 1 included 78 subjects, including patients, family caregivers, and professionals. Some 20 additional palliative patients participated in sample 2. Finally, 70 …
Blunted Electrodermal and Psychological Response to Acute Stress in Family Caregivers of People with Eating Disorders.
2016
AbstractCaring for an offspring with an eating disorder (ED) is associated with high levels of distress, and health problems. Indeed, ED caregivers have to cope with a range of challenges related to their caring role, which represents a chronic stress situation. This tends to alter body homeostasis and caregivers’ health status. This study aimed to analyse the electrodermal reactivity and psychological response to acute stress in ED caregivers compared to non-caregivers. As expected, caregivers showed lower electrodermal (p < .001, η2partial = .269 for SCL and p < .01, η2partial = .214 for NSCRs) and psychological response (p < .05, η2partial = .198) to acute stress than non-caregi…
Being the Family Caregiver of a Patient With Dementia During the Coronavirus Disease 2019 Lockdown
2021
Background: Family caregivers of patients with dementia are at high risk of stress and burden, and quarantine due to the coronavirus disease 2019 (COVID-19) pandemic may have increased the risk of psychological disturbances in this population. The current study was carried out during the national lockdown declared in March 2020 by the Italian government as a containment measure of the first wave of the coronavirus pandemic and is the first nationwide survey on the impact of COVID-19 lockdown on the mental health of dementia informal caregivers.Methods: Eighty-seven dementia centers evenly distributed on the Italian territory enrolled 4,710 caregiver–patient pairs. Caregivers underwent a tel…
Models of long-term care use among older people with disabilities in Taiwan: institutional care, community care, live-in migrant care and family care
2014
The four main models of long-term care (LTC) for older people in Taiwan are institutional care, community & home-based care, live-in migrant care, and family care. This study aims to examine the factors associated with the four above-mentioned LTC models, using the Andersen model as its framework for analysis. Data were from the 2005 National Taiwanese Health Interview Survey (n=30,680) and in this study 592 over-65-year-old persons who require personal care in daily life were included. The findings showed that the majority of older people with care needs lived with family and were cared only by their family. The second largest group were those older people who were cared by migrant care wo…